Dave
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Post by Dave on Aug 9, 2009 15:16:42 GMT
Lewis, Grahame and I, spent nearly two hours this afternoon with Megan, Lauren and Richard. I can’t thank Lauren and Richard enough, for allowing us to spend such a lovely and wonderful time with them. I do want to say a few words about Lauren and Richard, about their warmth and just what a wonderful couple they are, but first I want to say a few things about Megan. If there was ever a dear little girl who should be called Princess, then that girl is Megan. I have never met a little girl with so much love inside her, so much affection that she wants to share with you. The cuddles she gave me were so meaningful and to hold dear Megan in my arms was really the greatest feeling I have ever had. Even when it was time to go, she stood in the kitchen doorway of Petef’s house and wanted to give me a big cuddle to say goodbye, she gave me such a sweet warm kiss and then opened her mouth to show me it was full of peanuts. “Do you like peanuts” she asked. We were soon discussing all the food we did like and we sure both agreed we liked Mc Donald’s. Lewis and Megan enjoyed their cuddle they both gave each other, it was not a cuddle that said we are both ill with the same illness, it was a cuddle that showed two children who had so much love to give, two children who shared real hope and a wish that they would both get better. Lauren and Richard are such warm, gentle and kind people; they will tell you that in their darkest days, it has been the kindness and warmth of people who have showed they cared, for them and for Megan, that has helped so much to give them strength... The strength they need to not ever give up the fight, to make sure they always keep believing and to hope and pray that a cure will be found to give their princess the full life she fully deserves. I know today also meant so much to Grahame, I know how much it meant for him and Lewis to share in the life’s of Megan Lauren and Richard and I would like to thank this dear family for letting us be with them today and sharing the time together we did. I’m very sure we will spent more time together in the future and I wish them all the very best in the world and to dear Megan I say thanks dear princess you made old Dave R a happier and better man for meeting you. I would also like to thank Petef for arranging our time with Megan, thanks for a great cup of coffee Pete, but what happend to the pie and chips I ordered.             |
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Post by aussie on Aug 9, 2009 15:34:48 GMT
Thats another box of kleenex gone mate, you must owe me at least two boxes by now! Great story, great pictures, very moving, and I couldn`t be more proud of all of you! Especially Megan!
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petef
Match Room Manager
Posts: 4,626
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Post by petef on Aug 9, 2009 15:49:56 GMT
No doubt about it Dave moments like these are rare when we can all "give" a little for a change . An experience I have found so fulfilling and worthwhile.
Its so much easier to turn the other cheek and its not really about the money, just caring and talking can mean so much and as I said to Lauren and Richard after "an hour long" ( I actually had time to cook you that pie and chips!!) conversation with Dave. Its so much better than being ignored!!
To all the forum members who have supported this very worthy cause my sincere and heartfelt thanks.
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Post by graystar on Aug 9, 2009 16:48:00 GMT
Such lovely pictures of a beautiful little girl. We were truly privileged to meet Megan and her mum and dad today. She gave us all such big loving hugs and made us all very very proud to have been there for her and her lovely family. I guess this puts it all into perspective. Most people go through their lives just getting on with things and taking everything for granted. Lauren and Richard are treasuring every moment with their precious megan, and the love and affection in this little family has to be seen to be believed. If only all families were like theirs! It was very humbling! My handsome boy Lewis loved meeting Megan, as did I, and hopefully my lovely wife Diane and beautiful daughter Amber will get the chance soon; and Richard and Lauren know that we will be there for them if they need us in the future. Thank you Pete and Dave for arranging this meeting and giving us the chance to share a little bit of time with Megans family; and thank you so much, Richard and Lauren for allowing us to meet your beautiful little girl.   |
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Post by graystar on Aug 22, 2009 19:41:40 GMT
We met up with Lauren, Richard and Megan on Thursday and visited Kevin, Jackie and Bobby Wright at Kenn, near Exeter. Bobby has made a remarkable recovery from neuroblastoma over the past five years, and we are hoping that the programme of treatment and other therapies that he had during this period of recovery may be used in whatever way possible to help both Megan and Lewis. Both families are now putting into place some major lifestyle and therapy changes that might make a huge difference to our lovely children and give them a promising and happy future. You have to try whatever all natural methods and therapies are available to try to make a difference to helping them to recover. Richard and Lauren are embarking on a very challenging few weeks and months and we are going to keep in contact to find out how this may make Megans life that bit better. You have to believe that there is hope and Kevins son Bobby and many other children have been helped to recover from seemingly impossible situations over the past few years. We are still fighting for this in our children and have great optimism for both Lewis and Megan. |
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Dave
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Post by Dave on Aug 22, 2009 19:57:10 GMT
Thanks for posting this Grahame, I was thinking about doing it last Thursday, but wanted to find out how you all got on at kenn.
As I said to Richard, nobody should be allowed to write Megan off and both Richard and Lauren must explore every avenue and never give up hope that a treatment will be found to give Megan the life she deserves.
I was disgusted to learn the local education department will not let Megan have any home schooling, she did go to pre school before she was unwell, but is unable to go to any school at this time.
Just what are they saying? its no good giving her any education, as she might die at any time? when I think of all the drug users etc who do get so much help in this country, it makes me so mad that Megan can't even be given just some home education.
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Post by graystar on Aug 22, 2009 21:39:23 GMT
I'm not 100% certain but I think Lauren mentioned on Thursday that Megan might get a small amount of home tuition. It wont really amount to more than a couple of 2 hour sessions a week but she said that Megan is really looking forward to it, so fingers crossed Dave that it will happen. Both Richard and Lauren are a bit more positive about things following our joint visit and they both said that there seems to be a little more light at the end of the tunnel. We have just got to see now how things go over the next few weeks with the alternatives that have been shown to them instead of just giving up on them like the NHS makes them feel has happened. One things for sure little Megan is a real fighter and is so full of energy. she was jumping around with bobby, amber and lewis in the trampoline like there was nothing wrong with her. They are a wonderful family and hopefully they will have a lot to look forward to in the future. It certainly wont be for want of trying thats for sure. Take care mate and I will see you later this week! |
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Post by aussie on Aug 22, 2009 21:56:20 GMT
You guys are awesome, I`m in tears typing this! They sound like they have really enjoyed this time together and with the luck they deserve they should spend many more times together and teach us ( I should probably just speak for my self ) how to enjoy life! I really hope this new treatment does help, I don`t know Megan but I feel I know a little about Lewis and if he cares that much for anyone then their worth it big time!
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Dave
TFF member
Posts: 13,081
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Post by Dave on Aug 22, 2009 22:05:45 GMT
You guys are awesome, I`m in tears typing this! They sound like they have really enjoyed this time together and with the luck they deserve they should spend many more times together and teach us ( I should probably just speak for my self ) how to enjoy life! I really hope this new treatment does help, I don`t know Megan but I feel I know a little about Lewis and if he cares that much for anyone then their worth it big time! aussie the most important thing is hope has been put where there was none, a small light has now been seen at the end of a very long and dark tunnel. There are no magic cures, nothing comes with any promises or guarantees, but what you get is hope and without that then you may as well just give up and write everything off. Finding the strength at times to even just be able to hope, can often be so hard, but I know just one look into Megan's eyes, will give anyone all the strength they will need, to carry on the fight for her. |
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Post by aussie on Aug 22, 2009 22:18:52 GMT
Mate it moved me, what I read, and I also hope there is light at the end of the tunnel and I will hold on and hope, every inch of the way! You know that!
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Post by graystar on Aug 23, 2009 15:25:09 GMT
Thanks Aussie, you are a hell of a guy just like Dave, with feelings and emotions that many blokes dont have. You're always there with a cheerful response and supporting people just like Dave. You should be really proud mate! Megan and her family are pulling along just like the rest of us and making the very best of a bad job and smiling as they go! Its situations like this that you never thought you would find yourselves in that make you take stock and value the things that really matter in your life. The lottery and all the other materialistic things in life arent worth anything without the love and good health of your family, thats for certain. Keep smiling mate, you do Oz proud! |
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